4. 3. Statement: Deemed Consent for Organ Donation — the First Six Months

Part of the debate – in the Senedd at 2:59 pm on 14 June 2016.

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Photo of Angela Burns Angela Burns Conservative 2:59, 14 June 2016

First of all, may I start off by welcoming you to your position? I hope we have the opportunity to work well together to try to improve health services within Wales. I’m very grateful for this statement. For those of you who were here in the last Assembly, you will remember that I very clearly worked very hard on this as an individual Member and I leant the Government my vote, and I’m very pleased to see, after six months—because I said I’d keep a watching brief over the next few years—that things are going so well. There are a couple of areas, though, where I would like some questions, and I would like to make the point that I speak on my own behalf because, of course, the Welsh Conservatives had a free vote on this matter.

Minister, have you had any additional thought as to promoting this with your colleague, the education Secretary, in terms of getting the message through to young people in particular? I conducted a very unscientific piece of research at the weekend when I saw this was coming up, when I asked representatives from one school in Carmarthenshire—a secondary school—two in Pembrokeshire and two in the Vale of Glamorgan what they knew about organ donation, and there were very, very lukewarm and woolly replies. Now, the previous Minister gave a commitment that our communication plan already has new funds set out in it to make a special effort to ensure that young people have the information that they need, and, of course, schoolchildren, those who are coming up to leaving secondary school and those at higher education colleges are those who are about to become 18 and will then be able to opt in or out. So, I’d like to know what you’re going to do to really try and ramp up that communication programme, do you have funds set aside, and if you could give us an indication of how much those funds might be.

I’d like to just drill down very slightly into the 18 people who hadn’t made a preference either way. You said that 10 of them went on to donate and, obviously, eight didn’t, and I wondered if there’d been much qualitative research undertaken as to the reasons that those who didn’t go on to donate might not have. It could have been just that they didn’t have a match and there was no-one who wanted their particular organs, but it would be very interesting to see if there are any trends there as to perhaps age groups or background as to why that message hadn’t got through to them.

I also would like to know if you’ve done or intend to do any qualitative research on those people whose families who did agree to allow organ donation to go ahead because, of course, one of the things that we talked about a lot last time was ensuring that there was proper training in place for the doctors and nurses who are involved in the organ donation area, and it’s about lessons learned. Are we handling those people effectively, kindly, compassionately? They’re at a time of great personal stress, and that’s why I just want to pick you up on one comment you made, which gave me a slight shadow of unease, when you said that there is a frustration that some people said ‘no’ and didn’t let their organs go ahead. We should accept that frustration as part of the freedoms that we give people, and I wouldn’t like that ever to be translated to a person at the front line into any pressure on a family. At the end of the day, it’s the family’s right. We’ve enshrined that in this piece of legislation, that if there isn’t presumed consent, that the discussion happens, that there is the ability for them not to proceed. And we shouldn’t show a flicker of concern over that, because that’s what we said and that’s what we must adhere to.

Finally, Minister, could you set out the budget that’s in place to promote organ donation and outline whether there’s scope for further investment, if research proves that we need it to move this issue forward? Thank you.