4. 3. Statement: Deemed Consent for Organ Donation — the First Six Months

Part of the debate – in the Senedd at 3:19 pm on 14 June 2016.

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Photo of Vaughan Gething Vaughan Gething Labour 3:19, 14 June 2016

I thank Mohammad Asghar for his particular points in an area of real challenge for us. I’m particularly grateful that you’ve highlighted the fact that, of people on the waiting list, there is a significantly higher than expected number, certainly out of proportion with the general population, of people from black and Asian origin communities, and yet, of the people who are registered on the organ donation list, there’s a significantly lesser amount than in the population as well. So, we do have a real challenge and some of it is cultural, you’re right. I also know that this isn’t religious; there’s no religious bar to being a donor. But there is the challenge of some of the cultural norms that have built up and how we get around those. That’s why the work of cognition in supporting that conversation has been so important.

There’s no point in pretending that that work is done and everything is fine now. It needs to be a continued conversation. We want to change the culture and the way in which people have that conversation. It’s also why personal stories have been so important and so powerful. Understanding people in the communities that you live in, seeing someone waiting on the list, and then seeing someone and their family who’ve gone through the process of someone in their family passing away but becoming an organ donor, are really powerful motivators to challenge the way people feel about their choices, and, in many ways, the most persuasive way.

So, I do recognise there’s more to do in this area. There’s no lack of complacency, but what I would say is we’ve already undertaken steps, and not just with people in the Muslim community; there is a range of black and Asian-origin communities in the Christian faith, as well as the Hindu community and the Sikhs as well, that we’ve had conversations with, too—so, a wide range of faiths to engage here as well, but also a wide range of languages. We have made sure that a range of information is available in a different number of community languages. That doesn’t mean to say that all is perfect or the engagement we have with a different range of communities cannot be improved, and I look forward to us understanding what more we can do to achieve exactly that, because I don’t think there’s any difference between parties on this point.