Part of the debate – in the Senedd at 5:43 pm on 29 March 2017.
Thank you, Deputy Presiding Officer. First of all, can I thank all the Members who spoke today? And can I say something I rarely say? I agreed with every word that every one of you said. So, I could sit down now and say, ‘I agree with everything you’ve said’, but I think, perhaps, I’d better say a bit more. Can I also thank the Minister for her reply? Most of all—and I think everybody would agree—I’d like to thank Margaret Hutcheson for getting the petition and bringing this before us.
Angela Burns: a woman dies every two hours in the UK. That means two have died since we started this meeting. It’s a difficult cancer to spot, and I loved your description, ‘the mistress of disguise’—I wish I’d thought of it. It can be confused with irritable bowel syndrome or the menopause, and, really, you catch it early and people live; you catch it late and people die.
Rhun ap Iorwerth: we need to change the structure and improve survival rates. I think everybody has said that. We want people to be found early and to survive. We need to increase awareness among women and GPs. To paraphrase you, we do have the problem in health all the time of the worried well as opposed to the unworried ill.
Hannah Blythyn, can I just thank you for showing the courage and raising a family issue? It must’ve been very difficult, but can I thank you for that, because I think, when people bring personal experiences to these debates, it adds a great deal more than those of us who speak in the third person?
Ovarian Cancer Awareness Month—very important. I didn’t know that it is the UK’s most deadly gynaecological cancer. I think it’s something that we do need to get out. We need to raise awareness. People need to know that a smear test does not detect it, and it’s crucial that GPs have an enhanced understanding. Caroline Jones, again, talked about early diagnosis and the problem of false positives from screening—that is one of the reasons why we didn’t support screening. We need a reliable screening method, and the sooner we get that the better. Julie Morgan mentioned Annie Mulholland. Many of us knew her mission to highlight cancer and ovarian cancer. The evidence that the CA125 test does not work, that’s why the committee did not recommend it, but we do need early diagnosis. We need people to go to their GPs, we need the GPs to recognise it, not to say, ‘Well, it’s probably irritable bowel syndrome’, or, ‘It’s your menopause, come back in three months’ time.’ But, a couple of these three months are reducing the chances of survival dramatically.
Minister, you’re absolutely right, screening causes harm and worry. If you’re screening people and you get false positives, people worry. I’ve been with a family member who, thankfully, didn’t have anything, to a cancer screening, and I’ll tell you what, I actually could have read the paper upside down and I wouldn’t have noticed I was doing so. It brings a huge amount of worry. That is why the committee did not recommend bringing in screening at this time. It is a silent killer; those were not my words, those were the words of the petitioner, but it is something we desperately need to get out there. Can I just say, I still am, and I’m sure the rest of the committee will be and maybe other Members are, disappointed that the proposal that we try and get it promoted, we try and get greater understanding among GPs and patients of what it is was not accepted by the Minster? So, can I, as a plea, ask the Minister to think again about it? It really is important that we get out there and let people know.
As I say, two women will have died this afternoon since we met. There are two families who are now in mourning because of it. The chances are they were caught late. If they had been caught early, those families would now be going through ordinary family life. That’s the bit that hits home for me, I don’t know if it does to others, that we are making a decision. If you catch it early, then people will live, and if you catch it late—. I think it was Angela Burns who said you’ve got a one in 10 chance of dying if it’s caught very early, and a one in 10 chances of surviving if it’s caught very late. That’s the difference. There’s a death sentence if we get it wrong. A plea to the Minister to reconsider, again, getting more information out there and getting more people to realise how important it is that if they’ve got any of these symptoms, to get there and for GPs to treat it seriously. Thank you.