Part of the debate – in the Senedd at 3:14 pm on 16 May 2017.
Thank you. I just want start by agreeing with you on your point about people with dementia and to reinforce the value of having advance care planning so people can make choices when they're in a position to do so, and to actively decide what they would want, rather than leaving it for other people to second-guess what they might have wanted at a different time in their life. And, actually, supporting people with dementia is particularly difficult. I know we'll discuss this later on today, but the process of going through and losing someone, and losing the personality they might have had, or parts of it, and then to lose them physically as well—it is a particularly challenging time for the individual who is going through that and their families as well.
I think I’ve already mentioned the progress on paediatric care, but what I haven’t mentioned, though, is the additional work we’ve had done on the transition between paediatric and adult services. It can be a really difficult time for the individual young person as well as their family, and this can be particularly difficult when relationships are built up through the paediatric service, and how that’s actually transferred on. But we’ve got a particular post within Wales, which is a first, based at the Children’s Hospital for Wales, and that particularly looks at the transition from paediatric palliative medicine into adult.
I recognise the point that you make about bereavement support pre death, about having that conversation earlier, and that’s recognised—the earlier the conversation, the better prepared people are for the bereavement. On your point about George Thomas hospice, you’re right: individual and community investment in creating that movement and then sustaining it as well is a hugely important part of what keeps the hospice movement special and well funded. I also want in particular to recognise the points you make about Ilora Finlay, the clinical lead for Wales, who is much respected right across the UK as a clinician. If you want to sum up Ilora’s view on end-of-life and palliative care, I think it would be fair to say that she says that Wales has much to be proud of, but also much more to do. I think it’s a fair reflection on where we are.
The final point I want to make is on the point you make about maintaining support for people in their last months and year of life. We know that too many of those people have unnecessary hospital admissions, and so it is something that is part of the focus for improvement. The latest figures show that there are 65,000 admissions of people in their last year of life—65,000 admissions into hospital. Not every one of those will be inappropriate, but we recognise that a number are, and with different support that person could be appropriately cared for in their own home. So, that’s a large part of the focus for improvement in the year ahead. So, I think the points are well made, and hopefully next year we’ll be able to report back on progress that has been made for people across the country.