Part of the debate – in the Senedd at 3:22 pm on 16 May 2017.
Thank you for the series of questions and comments. On the point about serious illness conversations, I’ll happily provide an update for Members about how many staff have undergone the training in the last year and how many more we expect to have that training over the next year and more as a result of the additional resource we are putting into it.
On your point about the survey of bereaved families and/or patients, I’d be happy to consider whether there is a better way forward from the iWantGreatCare survey, but at this point in time, no-one has suggested to me, and it’s not been an ask from the board, that we need to have a different means of understanding feedback directly from people involved in the care and people who are involved in receiving care as well. I would have expected, if there was a real call for that and there was an inadequacy, that that would have come through the board, both from clinicians who are still champions for their patients, as well as from the campaigning third sector as well. So, if there is real evidence there’s a need to do something different, then I’m open minded about it, but I would need to be persuaded that we don’t currently have an adequate way of understanding the quality and the impact of the care that is provided.
On the same note, on the point you made about the organisation of palliative care, we’ve got more people available at different times in the day now as well. We’ve got a service that is available throughout the week. I’d need to be persuaded that there is a different way in which that should be accessed. Part of the challenge, of course, and one of the points you made earlier, is what happens to those people who die alone in their own homes. Those evens, fortunately, are few and far between.
There is a broader challenge about how we as a society engage within our own communities, with our neighbours, and with our loved ones. Because, actually, if family members are not engaging directly with those people, it’s very difficult to then say it’s somebody else’s problem, whether it’s the Government or the health service. There’s a challenge about how people engage in services. The great majority of people are engaging in health services towards the end of their life. It’s relatively unusual to have a sudden end to someone’s life. It normally comes when people expect that is what is going to happen.
It’s really about how we support people involved in caring for people at the end of their life—those are people in families, friends, and of course professionals in health and care services. That’s how the primary care register is drawn up and maintained. It is exactly that: people involved in care making sure they’re ready and available to make sure we can properly target the resources we do have to properly support the professional and the individual.
The final thing I’ll say, on your point about the engagement, or otherwise, of the third sector and individuals, and engagement with the Government about the survey evidence that exists, is: we actually know, from all the different fields of engagement, that the hospice movement and third sector organisations are part of the organisation that designs and delivers these plans. They’re part of the delivery board. They talk regularly to their health service organisations and individual commissioners as well. That’s part of the strength of the way in which we design and deliver our delivery plans. I want to see that maintained. If people do have real evidence there’s an inadequate source of information, I’ll consider it. But, really, we don’t want to undermine the strength of the board in the process. We do know there’s very real challenge delivered through that, and I think we’re all the better for it.