Part of the debate – in the Senedd at 2:19 pm on 13 June 2017.
Can I thank Vikki Howells for raising awareness again in this Chamber of those two all-important awareness weeks—first of all, the work that’s been done by the charity Unique to raise awareness and understanding of chromosome disorders? Obviously, in terms of the experience of your constituent, it is very important to recognise this is the fourth awareness week, and the Welsh Government is committed to improving services for people living with rare diseases such as chromosome disorders. Our rare diseases implementation plan was first published back in February 2015. That was a response to the UK strategy for rare diseases, and there’s progress against the plans being monitored by the rare diseases implementation group. That does include representation not only from Welsh Government and health boards, but also the patient group Genetic Alliance. That will be updated to ensure it remains fit for purpose.
Also, on your second point, in terms of awareness of cervical screening, nearly eight out of 10 women in Wales attend regularly for their smear, but we know that coverage rates for last year saw a slight drop. We have to do more work to maintain and improve participation rates, and the screening engagement team of Public Health Wales is working with local public health teams, health boards and primary care clusters to consider cervical screening uptake in each area. There is a pilot programme also looking at the future implementation of HPV testing, but I think as far as cervical screening is concerned, we have to look at where the uptake is lowest.