Part of the debate – in the Senedd at 2:26 pm on 15 May 2018.
Could I call for two statements, or responses to two matters? The first on advance care planning: this is actually Dying Matters Week, from the 14 May to 20 May. Macmillan Cancer Support have published their report into advance care planning across the UK, including Wales, called 'Missed Opportunities', and they've asked me as chair of the cross-party group on hospices and palliative care to both raise this report and highlight the fact that this is Dying Matters Week in the Assembly this week.
They're urging the Welsh Government to honour its commitments, set primarily within its palliative and end-of-life care delivery plan, to support and roll out advance care planning and put the systems in place to ensure that advance care plans are acted upon as an important part of a person-centred health service, ensuring that people approaching the end of their lives receive the best care possible and that their wishes for death and dying are fulfilled.
Briefly, their report found that although almost a quarter of people with cancer in Wales have difficulty talking honestly about their feelings around cancer, more than three quarters of people with cancer in Wales have thought about the fact that they may die from the disease. However, in-depth conversations with health and social care professionals and people with cancer reveal there are a number of barriers preventing honest conversations about dying from taking place, not least the pressure to stay positive and support people to fight cancer even when they've received a terminal diagnosis. This, hopefully, might merit more than simply a response from yourself now, but a Welsh Government statement, given the importance of this matter to all of us, because it does affect all of us in our lives.
Secondly, and finally, could I call for a statement or even, dare I say, a debate in Welsh Government time on another equally important matter, and that's support to the deaf community and people with hearing loss in Wales, because 14 May to 21 May is also Deaf Awareness Week? Deaf Awareness Week aims to raise the awareness and challenges of deafness and hearing loss, ensure access for deaf people to information and services at first point of contact, promote equal access in health settings, particularly in reception areas, ensure accurate diagnosis and appropriate treatment, provide clear and concise information about treatment and health management, and engage with and involve local deaf communities on a regular basis—also to improve access to education and social care, ensure people have the access to information they need, advocate and inform government and the public at large about deafness and hearing loss, improve services, but, above all, raise the profile and importance of equality, accessibility and recognition by supporting deaf access and communications, employment, British Sign Language and the deaf Olympics, noting, for example—and I'll finish with this—that although a checklist developed as a practical supplement to the all-Wales standards for communication and information for people with sensory loss was sent to health boards and health establishments across Wales, deaf organisations in Wales report that many health boards and establishments have not taken this on as a way of tackling the inequalities faced by British Sign Language users in Wales. I hope you agree that that merits a more substantive response from the Welsh Government in this place. Thank you.