Part of the debate – in the Senedd at 4:41 pm on 13 June 2018.
We absolutely have to cherish carers, because if we don’t, we are not operating prudent healthcare, and we will end up causing the system to be far more expensive as well as far less responsive to the needs of individuals who need that care. I have in mind an elderly constituent, in her late 80s, who is still looking after her autistic son in his 50s. I do worry about that, because I do feel there is not a plan for what is the inevitable demise of this carer. But, obviously, that’s something that social services need to be mindful of.
I also think that we need to recognise absolutely the lifelong commitment of parents who have children who are never going to grow up into independent adults because of the disabilities that they have. I think about these parents who know that their child has the cognitive ability of a five-year-old and, inevitably, they are going to depart before the child, and ensuring that they have long-term arrangements for after their death is so important to them. Even if they've got money, they have to know who is going to be looking after this individual when they’ve gone, because that is not the normal pattern of things, and it’s absolutely essential.
Looking at the 'A Healthier Wales' plan, which was published on Monday, I note that we talk about working in true partnership, but then I can’t really see anything very much on how we are going to be working in co-production with carers in developing these plans, because I think that that is absolutely crucial. I am delighted to see on Twitter that the Cardiff regional development partnership has today launched their commitment to carers, which is an indication of how that organisation, at least, takes seriously the contractual arrangement they must have with carers. So, I’d be very interested to hear from the Minister how we’re going to engage parents, not just talking to them and listening to them, but working on co-producing solutions that will enable them to go on being successful carers.