2. Business Statement and Announcement

Part of the debate – in the Senedd at 2:36 pm on 19 June 2018.

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Photo of Mark Isherwood Mark Isherwood Conservative 2:36, 19 June 2018

I call for two statements. Firstly, to add my voice to the voice of Simon Thomas earlier regarding the provision of medicinal cannabis on prescription. We heard of the case—it was well publicised—of Billy and Charlotte Caldwell. You may recall that, in January, I led a debate in the Assembly, as chair of the cross-party group on neurological conditions, highlighting that this wasn't about one person, it was about multiple people, with multiple conditions, who were already being forced to access cannabis illegally, rather than having individually distillated prescriptions to meet their particular needs. After that debate, I hosted Billy and his mother Charlotte in this Assembly, and they told us their story. We heard that Billy used to suffer up to 100 seizures a day until he began treatment with cannabis oil, following successful treatment in Los Angeles by a children's epilepsy specialist, and he became virtually seizure free. On return from Los Angeles, Charlotte told us, he became the first person to be prescribed medicinal cannabis on the UK NHS. Charlotte has been campaigning for medicinal cannabis from the NHS, recognising the desperation felt by many families fighting to be afforded the same access that she fought so hard for. And she was adamant, and remains adamant, that this is a separate issue entirely, and must not become confused with debates over recreational use, or broader drug legalisation—a valid debate, many people may feel, but not relevant to this debate. She contacted me again in May, after her doctor was summoned to a meeting with Home Office officials, and told to desist writing his prescriptions. After that, I wrote to the Home Secretary, urging him and his officials to urgently contact her to find a resolution and a way forward. We heard that the UK Government has now set out plans for an expert clinical panel to look at individual cases, and I know, in January, I was calling on the Welsh Government to put in place preparations within the Welsh NHS for potential prescription here. Adding to Simon Thomas's comments, I would be grateful for a detailed statement acknowledging the issue and detailing how the Welsh Government proposes to address this, in alignment with the UK, but also in the devolved context, and hopefully add its voice of support, a voice that sadly wasn't fulsome when I led the debate in January.

Secondly, I want to add my voice to calls by Andrew R.T. Davies earlier, in questions to the First Minister, regarding prostate cancer diagnosis in Wales, and for a statement accordingly, on this date when Prostate Cancer UK has produced figures following research they've carried out across the UK that don't put Wales in a particularly good light. More than 2,500 men are diagnosed with prostate cancer each year in Wales; about 600 will die in Wales each year. I had a letter from the Cabinet Secretary only last week, to a constituent, again saying he can't see any reason why a patient in north Wales with suspected prostate cancer should have to pay privately for an mpMRI scan if they've been found to have a negative biopsy. I've repeatedly told him—and I have numerous constituents who come to me who have gone to the community health council stating they have had to pay and still haven't had justice. The figures referred to by Prostate Cancer UK were from a freedom of information request to health bodies across the UK asking them about the use of the scans before biopsy. They found that whereas across the UK only 13 per cent of health bodies were not providing it, the figure in Wales was 50 per cent, and they said, 18 months after the promised trial first proved that the mpMRI scans before a biopsy could radically boost detection of prostate cancer, in their words, that

'Wales is lagging behind other parts of the UK in terms of making this breakthrough diagnostic available, putting Welsh men at a disadvantage.'

Well, let's put some action behind the rhetoric about Wales leading the way and Wales wanting to show the rest of the UK how things should be done. This shouldn't be happening. We need action pre biopsy, we need action pro biopsy and we need these men's voices to be heard at last.