5. Statement by the Minister for Children, Older People and Social Care: The Learning Disability: Improving Lives Programme

Part of the debate – in the Senedd at 4:43 pm on 3 July 2018.

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Photo of Michelle Brown Michelle Brown UKIP 4:43, 3 July 2018

Thank you, Deputy Presiding Officer, and thank you also for your statement, Minister. I'd also like to thank the Paul Ridd Foundation for their valuable work in helping to produce the report. As you say in your statement, the report's three immediate priorities are health inequalities, community integration, and improving planning and funding systems. The report's first priority, or at least it's the one that appears first on the document, is to address the health inequalities suffered by people with learning disabilities, and rightly so.

Testicular cancer sufferers who also have learning disabilities have a one in 10 chance of dying as compared with a one in 36 chance in the general population. In the most recent year for which we have figures, 75 per cent of people with learning disabilities eligible for colorectal cancer screening had the test, compared with 80 per cent of those eligible people without learning disabilities. Corresponding figures for breast cancer screening were 51 per cent and 67 per cent, and, for uterine cervical cancer screening, 30 per cent and 76 per cent. It's ironic, to say the least, that some of the most vulnerable people in our society are still being let down by the healthcare, social and education systems, after 70 years or so of state education and the NHS.

You've made some general statements about the ways that health inequalities will be reduced, but they are not very detailed. In England, in 2013, a report was produced by Bristol University that made 18 detailed recommendations aimed at reducing premature deaths of those with learning disabilities, and the Government responded later that year. Again, in England, objectives have been set since 2014 for the NHS there to close the health gap between people with mental health problems, learning disabilities and autism, and the population as a whole. Again, NHS England also published a national action plan to develop community services and close in-patient facilities for people with a learning disability and/or autism. I could go on, but I won't. 

Now, no doubt the opposition parties at Westminster have their own views about how effective all that work has been, but the fact remains that the work is still being done across the border. So I'd like to ask: to what extent are you using the information gathered from those studies, and the work being conducted over in England, to inform the work that you're doing here? Have the Welsh Government measured any impact of the approach that the English NHS and the Government responsible for it are taking? Have you looked at that research, have you looked at the reports that have been produced, have you looked at the action plan, and what's your view? Are you learning from it for Wales? The Westminster Government has been looking at this in detail in England, so I wonder why it's taking your Government so long to catch up.

If implemented, your report is likely to make a positive impact, and don't get me wrong, I really do welcome your report. I think it's a good report and I think it's a very good first step. But you do admit that there is no new money to implement it, and the existing budget is under strain. So, what assurances can you give us that what you say you want to do will actually be done and will continue for years to come? Will the money and the funding be there in the future to support it? The people whose lives are affected by learning disabilities deserve to know that they're high upon your list of priorities. So, if there are problems with budgets in the future, which areas of spending will be cut before these proposals are put at risk?

What detailed plans are there to increase the screening and take-up rates in Wales and the other inequalities suffered by people with learning disabilities in the health system? Now, I know the healthcare system isn't in your portfolio, Minister, but the welfare of people with learning disabilities is. What happens to people with learning disabilities in the healthcare system is intrinsic to their overall welfare. So, I'd be very interested to hear what work you're doing with the Cabinet Secretary for health to co-ordinate your activities to work together to improve the chances and reduce the health inequalities that people with learning disabilities are suffering.

The recommendations in the report itself are very laudable, but without knowing who has a learning disability and therefore needs the help, you're at a bit of a loss to help those people. There are a great number of people who haven't been identified, and you've acknowledged that yourself in your report and in the statement. I am very pleased to see that you're actually looking at ways that you can gather the data so that you're better informed in the future. What specific research will you be conducting, though, to gather that data, and how will you actually go out and gather that data? Which sources are you looking at using? Or are your plans in such a prototype phase that you aren't going to be able to tell me that? Finally, what plans have you and the Cabinet Secretary for health put in place, will you be publishing your own action plan to achieve the objectives of the report and, if so, when? Thank you.