Part of 1. Questions to the First Minister – in the Senedd at 2:03 pm on 10 July 2018.
Last week, I hosted and chaired the Epilepsy Wales annual Epilepsy Aware event in the Assembly, and we heard that people with complex epilepsy were not able to access treatment, including the keto diet, although recommended as a first-line treatment by the National Institute for Health and Care Excellence. This included children with epilepsy after unsuccessfully trying two first-line drugs, which is also recommended by NICE—children who have a GLUT1 diagnosis. How do you therefore respond to their call for provision within Wales of the necessary treatments and levels of care as outlined in the NICE guidelines, a ketogenic team, and accepting the offer from the Daisy Garland foundation to fund a dietician in Wales for a year with immediate effect, alongside similar proposals in a list of ideas that would, finally, if delivered in Wales, meet the needs of these people and, as they say, impact positively on the finances of the NHS?