6. Statement by Paul Davies: Introduction of a Member Proposed Bill — Autism (Wales) Bill

Part of the debate – in the Senedd at 4:27 pm on 18 July 2018.

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Photo of Lee Waters Lee Waters Labour 4:27, 18 July 2018

Can I thank Paul Davies for attempting to address some of the concerns I've expressed about the range of neurodevelopmental conditions being addressed by this? I appreciate his efforts and I look forward to seeing how that is scrutinised as the Bill goes through to see whether or not that is going to be robust enough to address my concerns. Last Friday, I went to visit Serendipity Day Nursery in Pembrey, who were the first school in Carmarthenshire to achieve the learning with autism early years programme, which has been developed under the integrated autism service programme. I was very impressed by what they had done there, where they were creating an environment where they were supporting a child with autism who still hadn't had a diagnosis—because there's a very long wait in Hywel Dda for a diagnosis—but clearly exhibited signs of autism, but also, crucially, addressing the other children too and making them understand what difference is all about and how they needed to adapt their behaviour to create a supportive environment.

I think, in all of this—and I've thought a lot about the role of legislation in this, and I remain open to the possibility of legislation if the integrated autism service is not being seen to deliver, but I think really what we need is a societal response around the concept of neurodiversity. This is a spectrum after all. There's no magic bullet. Once you have a label, once you have a diagnosis, it doesn't mean you're going to be cured. It's about creating an environment where we appreciate that all of us have strengths and weaknesses and we accommodate that and we allow people to achieve their potential. It may be there's a role for law in that but, if it was that simple, we've already passed laws that should cover some of this stuff. The fact we feel they're not quite working does suggest that another law may not be the easy answer that we are looking for.

I'm aware that the National Autistic Society have launched a very effective campaign, but it should be recognised that the clinicians and professionals working with this condition are not of a unified view on whether or not legislation is the right approach. They're very discomfited to say that in public but I've spoken to a number who are not comfortable with the idea of an autism Bill and they don't think it's the right use of resource or priorities or focus. I think the Cabinet Secretary, to my mind, made a persuasive case in that, if there is finite resource in the system, surely we're best directing that at improving the service rather than developing legislation and all the rigmarole that goes around it.

That said, the integrated autism service is still not fully rolled out. It doesn't exist in Carmarthenshire, and there are still teething problems. I spoke to one practitioner just this morning who pointed out to me that there is a real problem they're concerned with where children with associated learning diagnoses are being turned away from the integrated autism service and exist in some kind of no man's land—they're told go back to child and adolescent mental health services because they have a specialist condition, whereas, in fact, it was CAMHS that tried to divert them away from CAMHS to the integrated autism service in the first place. So, I think that's an issue that I'd like the Cabinet Secretary to look at. I think there are still teething problems as this new service beds down. And I think we can all agree that that's what we want—it's the ends. We can discuss the means; it's the ends that matter, and I still think there's some persuading to do to convince all of us that a piece of legislation is the way to do that.