Part of the debate – in the Senedd at 2:25 pm on 18 September 2018.
Leader of the house, can I ask for two statements from the Welsh Government? The first one relates to education and it's linked to the decision by Neath Port Talbot council to close Cymer Afan Comprehensive School. We had a recent statement from the Cabinet Secretary relating to closures of rural schools and the consultation and the outcome of that. Clearly, I would like to have a definition of what is deemed a rural school, because there are Valleys areas that may deem themselves in that category. I also understand that that will take effect as of November, but the decision has been taken in the summer, so how does that impact upon that? I think there's an opportunity to ask questions in relation to that particular aspect to see how this impacts, because the closure proposal is not until next September, so it actually will take place after November, so there needs to have a very careful look at that.
The second one is the question of Orkambi; that drug is for those who suffer with cystic fibrosis. I understand that that drug is effective for about 50 per cent of those with that condition. I wrote to the Cabinet Secretary for Health and Well-being during the summer with written questions, and I've had replies that indicate that he hasn't had discussions with Vertex itself, but he has asked the All Wales Medicines Strategy Group to actually go and communicate with them. We need to look at what the implications are. That drug can help people with cystic fibrosis, and what's important is it helps young people and therefore can change their futures. So, can I have a statement from the Cabinet Secretary on the position with Orkambi in the Welsh NHS to ensure that, wherever we can, we help these young people overcome a condition that is really debilitating for them and can shorten their lives?