Part of the debate – in the Senedd at 3:09 pm on 3 October 2018.
Diolch, Llywydd. October is Cerebral Palsy Awareness Month, and next Saturday is awareness day. Cerebral palsy is the most common childhood disability in the world, affecting one in every 400 children across the UK. Around 70 babies born in Wales this year will have cerebral palsy. It affects posture and movement as a result of brain damage. It can also affect sensation, perception, cognition, communication, and eating and drinking. It makes activities such as walking, talking, dressing and fine motor skills, which most of us take for granted, difficult.
Well, Bobath children's therapy centre Wales, a specialist centre for the whole of Wales providing therapy for children who have cerebral palsy, are developing a cerebral palsy register. They would like Wales to have the benefits that other countries with registers do, such as: knowing the size and distribution of the population of individuals who have cerebral palsy in Wales; being able to map services against populations; the ability to plan care and services for a known population; the ability to incorporate hip surveillance into the register and reduce the incidence of dislocating hips and the need for surgery; being able to include Wales data and population research into cerebral palsy and interventions; and increasing the voice of people who have cerebral palsy.
We therefore call on the Welsh Government to help make this happen and engage with the cerebral palsy community and Bobath to help many children, parents, carers and families in Wales on this basis. Diolch.