2. Business Statement and Announcement

Part of the debate – in the Senedd at 2:24 pm on 6 November 2018.

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Photo of Bethan Sayed Bethan Sayed Plaid Cymru 2:24, 6 November 2018

Could I request an update on what the Welsh Government is doing for those with complex care needs, especially those people with muscular dystrophy? I hosted an event last week—a cross-party event—with regard to muscular dystrophy, and we had many families there who raised concerns about the lack of medical awareness among key staff in the NHS. Two of the people at the meeting told the group that they or their family member had been to a hospital where medical staff were sadly not listening to the specific needs and pharmaceutical requirements of these patients and, in one case, medical staff asked the patient to take medication that could have—had she taken it—led to her death. I think this is something that needs to get more political priority. We need to understand how specialists are engaging with those with muscular dystrophy. There may not be hundreds of thousands of people suffering from this condition in Wales, but when they do have it it is something that they have for life. So, I would like to have a statement from the Welsh Government on an update on what's happening in this area, so that we can go back to those people who have concerns and raise them appropriately.