6. Debate on the General Principles of the Autism (Wales) Bill

Part of the debate – in the Senedd at 4:10 pm on 16 January 2019.

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Photo of David Lloyd David Lloyd Plaid Cymru 4:10, 16 January 2019

(Translated)

Thank you very much, Bethan. I would agree, and that's the kind of evidence that we heard time and time again during this inquiry as we scrutinised. The parents told us that not all high-functioning people with ASD are eligible for social services under the Act, and, while they may have a high IQ, they may have great difficulty undertaking daily tasks.

Adults with ASD who took part in the committee's visit to Autism Spectrum Connections Cymru here in Cardiff told us that they felt that they were an invisible group in the autism community as they did not fall into the category of children or adults who need day-to-day care and they're not affecting employability and disability statistics. We heard that they're keen to work but are unable to get a job and need support to help them into employment.

And we have not, as a committee, been able to reach consensus on whether this legislation at this particular time is the most appropriate way of achieving these much-needed improvements. Some Members support the introduction of this Bill now, believing that it is both timely and necessary to put services on a statutory footing to deliver improvement where previous strategies have failed to do so and achieve the change required for people with ASD and their families. Other Members feel that more time is needed for existing initiatives and legislation to take effect. Some were also concerned about the focus of the Bill, which some believe is diagnosis-led rather than needs-led and the potential consequences for people who will not receive an ASD diagnosis and/or have other neurological conditions. However, we are in agreement that there is a pressing need to improve support services for people with ASD and their families across Wales, and we believe that this must be addressed as a matter of priority.

To this end, we have made a series of recommendations to the Welsh Government aimed at driving forward these improvements. These include directing the integrated autism services to improve the consistency of the service across the regions beyond what is done at present and to ensure that services in the third sector receive sustainable funding to continue with the specialist support services that they provide for people with ASD and to expand these services. Second, to direct the integrated autism services to improve the consistency of the services across all regions to ensure a national approach, taking urgent action to address the clear need for employment support for adults with ASD. Then instructing health boards and local authorities to ensure that there are multiple appropriate referral pathways available to all, including a specific primary care pathway, and that existing barriers between the health, care and education sectors are removed—for example, to enable GPs to refer children for education support. Then a mandatory requirement for all school staff, particularly teachers and teaching assistants, to receive training in awareness and understanding of ASD during their initial teacher training and as part of their continuing professional development.

We also made a recommendation to the Member in charge, as we've heard, that, if the Bill proceeds to Stage 2, an amendment should be brought forward to ensure that judicial review is not the only route available for individuals to assert their rights. I note that the Member in charge accepts the principle behind this recommendation but has been unable to identify a workable solution to address the issue. This is disappointing—but we can understand the reasons why—as it came as a result of our conversations with parents who told us of their concern about their ability to seek appropriate remedies where necessary, given the complexities of the judicial review process.

We've not yet, as a committee, received a formal response from the Welsh Government to our recommendations, and I look forward to hearing from the Minister later on in this debate. Thank you very much.