Part of the debate – in the Senedd at 4:46 pm on 16 January 2019.
I'm grateful for your intervention, Dai—and as do I, of course. Now, on the other side of this debate we have the people with autism and their families, and the organisations that represent them. Through this process, I personally heard no voices from this group opposing legislation, though I fully accept that that can't possibly cover the views, and I have heard, and listened very carefully to, what Hefin David has had to say—though, of course, many family members were clear that legislation alone wouldn't be enough.
They described, as I've said, the huge challenges faced in accessing services. I was particularly struck by parents who had contributed to previous consultations, who had sat on national and local working groups, contributed hundreds of hours of free advice and support—and then to hear from them that, from their perception, nothing has changed. They don't believe that, without legal force, anything will. I have to tell the Minister that these families feel they have heard this all before.
Now, the Government position, which I want to refer to briefly, is odd, to say the least. On the one hand, the Minister says that a diagnosis is not needed, and that the social services and well-being Act sets out how support should be provided for people, based on need, without a formal diagnosis. I would absolutely support that position, but all the evidence we received on the health committee is that that is not the case. Particularly for children with autism, without a diagnosis, nothing happens. This is just not happening, and even if it was, some of the people with autism will never meet the threshold for the kind of support that that Act is designed for.
Now, the Minister says that condition-specific legislation is unhelpful and isn't needed. Yet, at the same time, he proposes to bring forward a condition-specific statutory code. Now, you know, Deputy Presiding Officer, this makes no sense at all. I'm quite used to getting mixed messages from this Government, but it isn't often that they actually openly contradict themselves as the Minister did in one of our meetings.
The families do not believe, on the whole, that a code is enough. Is this legislation perfect? Well, possibly it is not, and the Member bringing it forward has acknowledged this. There are concerns about the difficulty of enforcing rights, and I know that he's agreed to look at this. There may be an overemphasis on assessment and diagnosis, rather than the statutory right to receive services. Again, the sponsoring Member has made clear that he is happy to work with others to address this through the next stage of the process.
Like the families, I'm afraid I am not convinced, having been through the previous process of creating the strategy, that anything short of legislation is going to get for these fellow citizens what they deserve. On that basis, and on behalf of the people with autism and their families, including those in the gallery here today, I commend this motion to the Senedd. Let's allow this legislation to go to the next stage.