6. Debate on the General Principles of the Autism (Wales) Bill

Part of the debate – in the Senedd at 4:40 pm on 16 January 2019.

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Photo of Hefin David Hefin David Labour 4:40, 16 January 2019

I've considered whether amendments would be effective and I don't think, given the assurance that we've had from the health Minister that, should a Bill be needed in the future—given the action that's been taken by the Government then I think it's appropriate that we don't move this Bill to Stage 2, given the amount of time then that amendments would take. [Interruption.] I don't accept that—telling me 'shame' when I've got personal experience of this. I think it's inappropriate to say that.

I'd like to share with you a letter from Ian Elliot, who is the headteacher of Trinity Fields School, and Michelle Fitton, who is assistant headteacher and lead for the very well-respected, recommended Caerphilly autistic spectrum service. These are people I respect immeasurably, and they have raised the concerns that have been raised in the committee evidence that's been received. They believe that the Bill relies with too little emphasis on the views of children and young people in line with the Welsh Government's commitment to the UNCRC, and they say, in a letter to me yesterday, that perhaps the focus should be on developing the code of practice and ensuring the resources to promote the delivery of services for those individuals with ASD alongside the Additional Learning Needs and Education Tribunal (Wales) Act 2018. They therefore recommend not to proceed with the Bill.

Aneurin Bevan health board have written to me and they say that

'we would also like to re-emphasise concerns regarding diagnosis specific legislation. There are concerns that the wider definition of ASD used within the proposals will not be agile or flexible enough to reflect and respond to the ever growing understanding of neuro-disabilities. As new classifications emerge the legislation would need to be regularly amended to reflect these new understandings.'

'Therefore, it is suggested that this reinforces the suggestion that any protection, however welcomed for ASD, should be on the basis of need and not diagnosis or condition.'

There are a myriad of symptoms that people with autistic spectrum condition demonstrate, and the fact that no two people are exactly alike makes it incredibly difficult to produce a piece of workable legislation. I am always working on behalf of those with autism and autism-caring responsibilities, and I would like to urge the Minister to see this call for this Bill to be a call for action from people who are affected by autism. I'm reassured by his letter yesterday, which outlined ongoing comprehensive action that he's taken, and I'm reassured by his speech that he's made today.

For my own part, while I await a diagnosis for my daughter, I can only praise the specialist support for my daughter's speech and language development that she's received, but we as parents had to fight for it. I also welcome the cruising into communication course I attended as a parent, which has enabled me to develop visual communication with my daughter. But it is the case that many questions and much uncertainty remain for me and for my family. I don't know what the future holds and what the next steps are, but I am as confident as I can be that the Government is taking action to provide more help for all of us who are affected by autism and its attendant needs.