Cerebral Palsy

Part of 2. Questions to the Minister for Health and Social Services – in the Senedd at 3:35 pm on 13 March 2019.

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Photo of Mark Isherwood Mark Isherwood Conservative 3:35, 13 March 2019

Thank you for that. Last week, I had the pleasure of hosting the cerebral palsy register for Wales launch event in the Senedd. The register, which will be the first national register in Great Britain, will record symptoms, assessments and ongoing care for people living with cerebral palsy collected by health professionals and stored anonymously on NHS systems. This could then be used to make long-term sustainable changes in service provision, making a real clinical difference, with better understanding of the population of people who have cerebral palsy and an ability to plan for the right services in the right place, initially starting as a pilot in Powys, before being rolled out across Wales. But it's currently dependent on charitable funding, and the register's creators have said that it will need to be fully integrated into NHS Wales to ensure its survival. Given that the Welsh Government—yourself—has said that you are supportive of the initiative, and that's been greatly welcomed, what action can you outline about the assistance that you propose to provide to support the register as this moves forward?