Okay. Thank you very much for that reply. As you will know, I chair the cross-party group on muscular dystrophy and we spend a lot of time talking about how clinicians deal with, or don't have the capacity to deal with, the particular condition. In one example in west Wales, one woman said a clinician tried to give her medication that was incompatible with her condition that could've led to creating very serious harm. Another gentleman from mid Wales said that he actually doesn't bother calling the local hospital or any emergency service because of the lack of understanding in that particular hospital of anything to do with his condition.

Obviously I'll write to you with those individual concerns, but I was wondering if you would agree to come and meet with the cross-party group in future to see how you can understand what is being discussed there and how we can build resilience in the system, so that there are more clinicians with an understanding of muscular dystrophy, if not a specialism, so that they can aid and help them feel more comfortable when they enter that setting.