Part of 2. Questions to the Minister for Health and Social Services – in the Senedd at 2:23 pm on 25 September 2019.
Thank you for that answer, Minister. Welsh eight-year-old Sofia Bow was born with the genetic disorder cystic fibrosis, which affects one in every 2,500 babies born. This Government has refused to fund the drugs Orkambi and Symkevi, even though they have been proven to improve lung health and reduce the need for hospital admissions, saying they're too expensive, while the Scottish Government has managed to negotiate a discount with the manufacturers so that the drugs can be prescribed to sufferers in Scotland. Sofia’s family are considering leaving their Welsh home to move to Scotland so that their daughter can get the life-changing treatment she needs. So, will you now copy the Scottish NHS in prescribing Orkambi and Symkevi? If it is just down to the money, once you've worked out a reasonable price for a child’s life, will you arrange a discount if required, or do you need the Scottish health Minister to do it for you?