Part of the debate – in the Senedd at 2:18 pm on 1 October 2019.
Could I call for three short statements, if I may? The first is on improvements in autism services. On 23 September, a week ago yesterday, the health Minister issued a written statement with that title, which merits an oral statement or even a debate in Welsh Government time. It states, for example:
'Some see the answer is to introduce autism legislation, but we know that in England where the Autism Act was passed in 2009, this has not achieved the benefits that were promised'.
And, it says:
'There is no equivalent to the progress we are making in Wales in the Integrated Autism Service'.
However, the National Autistic Society in England tell me that there has been significant progress in having a diagnostic pathway under the Autism Act there, with many more people presenting for diagnosis. Every area has an autism lead, and the last report said that the number of autistic people who have been found eligible for social care is up, and more diagnosis pathways are specialist autism ones. The wider autism community has asked me to challenge the perception that progress is being made in the integrated autism service where, for example, we don't have any information from it that measures outcomes for autistic people who have accessed the service, and much more besides, but I haven't got time to go into this now. It does merit time to ask appropriate questions accordingly.
Secondly, could I call for a statement on support for people with motor neurone disease? Again last week, the Motor Neurone Disease Association launched their 'Act to Adapt' report on housing adaptations for people living with motor neurone disease, pointing out that people with MND need their home adaptations quickly and easily, so that they can live safely, independently and with dignity. Their calls included for national Governments in England and Wales to review the funding distribution formula for disability facility grants, taking into account levels of disability and income, housing tenure and regional variations of business costs; for Governments in England and Wales and Northern Ireland to review the means test to address key identified problems; and for national Governments, including Wales, to include target waiting times for urgent and non-urgent works in transparent and measurable standards for adaptations, and to monitor against those targets.
Finally, could I call for an oral statement following the written statement by Jane Hutt AM, Deputy Minister and Chief Whip, on 19 September, 'Action on Disability: The Right to Independent Living'? It says the framework sets out how Welsh Government is fulfilling its obligations under, amongst other things, the Social Services and Well-being (Wales) Act 2014. Its Part 2 code of practice refers to, or recognises that disabled people can achieve their potential and fully participate as members of society, consistent with the Welsh Government's framework for action on independent living, expressing the right of disabled people to participate fully in all aspects of life. So, for example, we need to know if and when the code is going to be amended to reflect the new guidance, and how public service providers will be apprised of that, where too many still ignore the code as currently drafted. In that context, finally, the new action on disability framework plan says that Welsh Government would develop a British Sign Language national charter for delivery of services and resources. However, as I stated here in February, the British Deaf Association is calling for local authorities and public services in Wales to sign up to their charter for British Sign Language and to make five pledges to improve access and rights for deaf and BSL users in Wales, where presently, at that stage, only two local authorities in the whole of Wales had signed up. So, let's work with, hopefully, the community, adopt the charter they have designed, and encourage all public service providers in Wales to sign up accordingly. I think we need that statement in this context relating to those two examples, but also many more where further clarity is required.