5. Member Debate under Standing Order 11.21(iv): Endometriosis

Part of the debate – in the Senedd at 4:15 pm on 14 October 2020.

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Photo of Helen Mary Jones Helen Mary Jones Plaid Cymru 4:15, 14 October 2020

Diolch yn fawr, acting Deputy Presiding Officer. Can I just say how grateful I am to Jenny Randerson, as many others have already said, for tabling this important motion—[Interruption.] Rathbone—I've gone into some kind of time warp. I'm very sorry, I've got my Jennys muddled up. I do apologise. But I'm really grateful to Jenny for tabling this and to everybody who has supported it. This is such an important issue and we've had so many really important contributions today.

I can't possibly respond to all the points that have been raised, but I hope that people will forgive me if I begin with Suzy Davies, because I think that that level of openness and honesty about how these issues affect our lives is so important. And I think that when women such as ourselves, who have got roles in public life, who are seen, perhaps, as being successful and confident—if we talk openly about the impact of these kinds of issues on us, it will raise awareness and it will help empower other women to raise the issues in their own lives. So, I'm personally very grateful to Suzy for being so open and honest with us today. I think you were right to say, acting Dirprwy Lywydd, that this is an example of the Senedd at its best.

So many issues have been raised: the impact—and Angela talked about this—of the physical agony, and many other people talked about that; the impact on our lives. I think Joyce Watson's point about the impact on women's working lives and the long-term economic effect that that can have over a whole lifetime, and others have raised that.

Jenny began, of course, talking about the importance of awareness, and our motion is very clear about that. And before I mention others, I want to come back, if I may, to some of the Minister's comments. Now, it's very welcome that he acknowledges the issues with the number of referrals and the length of time it takes, and he emphasises the local health boards' responsibilities, and, of course, that is the case. But I'm glad to hear him commit today to writing to the health boards once again, because whatever has already been said, it's clearly not getting through. He tells us that the NICE guidance does give a clear pathway. Well, we've heard from Dr Dai Lloyd that that's not a pathway of which he, as a practising GP, was aware and was able to work with and deliver. So, there's obviously a lot of work to be done there in terms of awareness of that pathway. And I would suggest to the Minister that he may want to ask the women's health group to examine that pathway and see if it's fit for purpose here in Wales, or if there are other things that need to be done.

I'm very glad that the Government is broadly supportive and understand that it's the usual practice for them to abstain, but I was a bit disappointed by what the Minister said about research, because there is a clear need for more research and he referred to that later in this contribution. And he says that there is no cure now. Well, of course there is no cure now. You know, decades ago, there were no cures for all sorts of illnesses that we cure now. And this comes back to the point that many speakers have made, and the Minister referred to it, indeed, himself: if this was an illness that affected and debilitated men in the way that it affects and debilitates women, we would've had that research and we would have a cure.

And the Minister refers to the living with pain guidance. Well, I have to tell the Minister today that women suffering with this condition do not want their pain managed, they want it gone. And we desperately, desperately need more research to enable us—. Because there will be a physiological cause for this and where there is a physiological cause, there will be the capacity to intervene. And the Minister said himself that if this was a condition that men were suffering from, we would've had something done. Well, we need the research to have that done, and we don't just need research into pain management, though that's important in itself.

So many really powerful contributions—Vikki Howells talking about the scale of the problem; Angela Burns, as I've said, talking about the way that it affects women's lives; Joyce again highlighting some sort of family experiences, the financial hardship. So many important messages coming out of the debate today. I'm glad to take from the Minister's contribution that he acknowledges that there is more work to be done. What I would say to him very, very clearly is that the cross-party group on women's health will be on the case with this. We will be following up the commitments that he's made, and where we feel that he needs to go a little bit further, we will push him. Because as we've heard from Suzy's contribution and as I know from the experiences of a very, very close friend of mine, this is not a condition with which women should be asked to live. We need a cure.