Part of the debate – in the Senedd at 4:01 pm on 3 February 2021.
Many colleagues in this debate have rightly focused on the impact of COVID-19 on individuals needing end-of-life care and their families who, in normal circumstances, would've been able to comfort and support them during this time. Over the last year, there have been some harrowing stories of patients nearing the end of life in hospital or in a care home, where that natural family love and support has not been possible—an issue touched on by Mark Isherwood earlier in opening.
In Baroness Tessa Jowell's final powerful speech to the House of Lords, she described so eloquently what it means to live with a life-limiting illness, and she made a profound statement about life and death, which resonates in this debate today. She said,
'In the end, what gives a life meaning is not only how it is lived, but how it draws to a close.'
End-of-life care is not just important to how a person dies, but how a person's life is given meaning; how, in part, it is remembered. It not only relates to medical care, but to personal care too. The involvement of family and close friends is at the heart of that. What's been so difficult for those people and their relatives over recent months has been the absence of what would normally be expected when someone is nearing the end of their life and the associated distress for families. And of course, as we've heard, it's not just families who have suffered, it's staff too. That's why our motion includes the impact on our health and care staff who have shown such professionalism and humanity during the course of the pandemic.
High-quality palliative care and bereavement support services are needed for families and staff, recognising some of the trauma of the past 10 months. We need to better understand the impact on our staff and how the experiences of this pandemic have shaped their view of their role and the services they provide, and what the battle against COVID means for recruitment of tomorrow's health and care staff.
We all know that, in ordinary times, our health and care staff work in tough environments, but no-one could've foreseen some of the conditions in hospital wards and care home rooms over recent months, where so many people have lost their lives. In many cases, staff have not just been doing their job and providing palliative care, but they've acted as surrogate families, where family members were not allowed to visit. If we're serious about responding to the consequences of this pandemic, we need to rethink how bereavement services and support are provided. That's why I'm supporting our call for a national bereavement framework and that we recognise that sufficient funding is needed to ensure that COVID-19 does not create another pandemic—that of poor mental health.
In concluding, Dirprwy Lywydd, I'd just like to touch on the specific challenges faced by people living with motor neurone disease across Wales—something that's been highlighted by the MND Association. The MND Association has been campaigning to allow MND patients to access benefits quicker during the pandemic period. At UK level, the Department for Work and Pensions have finished their review, and I'd like to hear from the Minister later about how the Welsh Government can help MND sufferers to access support quicker during the final stages of life.
In conclusion, Dirprwy Lywydd, I ask Members to support this motion. Let's strive to help patients with long-term and terminal illnesses access the care that they and their families need. Let's strive to ensure that our doctors and nurses can access a proper support network to help with their emotional well-being, and let's ensure that people from all parts of Wales can access professional bereavement services.