11. Short Debate: Adapt now Welsh homes for motor neurone disease: how can we make sure people living with MND have safe and accessible homes, maintaining independence, dignity and quality of life

Part of the debate – in the Senedd at 6:01 pm on 3 March 2021.

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Photo of Mark Isherwood Mark Isherwood Conservative 6:01, 3 March 2021

In addition to safe and accessible homes, carers are key to the maintenance of independence, dignity and quality of life for people living with MND. As stated by Carers Wales, unpaid carers are saving the Welsh Government £33 million every day of the pandemic, but this comes at high personal and economic cost. A report by the Motor Neurone Disease Association found that a third of MND carers spent more than 100 hours each week providing care, more than double the average working week. Forty-five per cent received no benefits at all, and the reduction or closure of many local services because of the pandemic has made a bad situation far worse. Unpaid carers are under increasing pressure to provide more care with less respite and formal support. We must therefore recognise and invest in third sector organisations providing key support services to unpaid carers, particularly during this difficult time. Once local authorities' duties are fully reinstated, it's important they're monitored to ensure they're supporting carers' rights by offering all unpaid carers an assessment to see what support packages might be available to them, including respite care. Thank you.