Part of the debate – in the Senedd at 5:40 pm on 10 March 2021.
At the request of the family, Kelly's care was subsequently transferred out of Wales to Bristol in November 2006, and the referral letter to the consultant in Bristol stated that Kelly had suffered a pituitary apoplexy. This information, by the way, incredibly, had never been relayed to the family.
Now that's a short summary of some of the tragic series of medical and clinical events that irreversibly changed Kelly's life and the lives of those around her. It must be put on record, of course, that the health board would dispute many parts of this clinical and medical narrative, but what cannot be disputed is this: this case has been routinely characterised from the very beginning by delays from the health board responding to requests, by denial of information or even the very existence of information, and this obfuscation led to a series of health and subsequent police investigations and legal proceedings being frustrated because of the inability to provide basic, essential health records in a timely manner, which would have facilitated those investigations.
I have personally witnessed the distress this has caused the family over these many years. They are still seeking answers for the physical and the emotional toll on Kelly and her family, which they will have to live with for the whole of their lives. Their experience, beyond the life-changing health impacts suffered by Kelly at the time she was receiving treatment, of the obfuscation and the repeated denial of access to information has undoubtedly exacerbated the suffering and the trauma of this family. And to this day, whilst the health board—. I honestly thank the former chair for meeting with me and with Mr Wilson at a later date. The chair has subsequently acknowledged the stress this has caused the family and the difficulty for the family and for my office in obtaining information, but this falls far short of an apology or any admission of fault, and it therefore raises the additional concern for the family of whether lessons were truly learned at the time and whether remedial actions were taken to prevent this happening to someone else.
And this case has been littered with detailed but critical discrepancies throughout. I will expand using some examples. Having pointed out to a doctor that copies of medical records the family had received were missing essential items, such as the results of a blood test at the time that Kelly was on the A3 Link ward, a doctor informed the family they could not have these results due to the computer only having five days' memory. Years later, this statement was withdrawn by Cardiff and Vale University Health Board as an, in quotes, 'off-the-cuff remark', but this off-the-cuff remark was used extensively subsequently by Cardiff and Vale UHB in communications with external bodies during that time as a justification.
Now, Garry and Kelly have continued their pursuit for the missing blood results. Their concerns focus on a crashed server in 2007, which was queried with both Cardiff and Vale UHB and also subsequently with the chief constable in police investigations in May 2015. Cardiff and Vale UHB were asked how many patients' records were lost in this crash, why was there no archive back-up of this server, and whether all active servers are now backed up on a regular basis. Their response indicated there was no record of any server crash in 2007 resulting in the loss of patient records, and that back-up and archive processes at that time would have been backed up according to standard industry-strength protocols, using the appropriate infrastructure and technology.
In the subsequent police investigation, the father, Garry, was informed that the chief constable of South Wales Police agreed to undertake tests on the crashed server, yet those inquiries ended abruptly with the police accepting the health board's original assertion that no paper records exist and that digital records were irretrievable because of the server failure and that other records relating to Kelly were also lost. And there are other matters relating to the police and health board response to these inquiries and their aborted investigations that fall outside the remit of this Senedd, which Mr Wilson is doggedly pursuing through his Member of Parliament and possibly through discussions with the Home Office and a future UK parliamentary debate.