Part of the debate – in the Senedd at 4:07 pm on 29 September 2021.
Dementia is a cruel, cruel disease that has a huge impact on thousands of families across Wales. I know about its devastating impact through my own family as my great aunt had dementia. We will hear many personal and powerful stories shared during this debate, so to complement that, I wanted to focus on what the third sector organisations had to say about what could be done to help improve people's lives and soften the blow that dementia delivers.
The Alzheimer's Society Cymru estimate that there are around 50,000 people in Wales living with dementia, and this is only a best guess since the current diagnosis rate, as we've heard, is only 50 per cent. That figure is expected to double by 2050. Having such an inaccurate picture of dementia in Wales means many people are not receiving the support they need or deserve. It also means that many who are receiving support are receiving it later than they should, resulting in poorer outcomes for all those concerned.
Anecdotal evidence suggests that around 4,000 people in Wales are waiting for an assessment by the memory assessment service due to the COVID backlog. As well as improved and earlier diagnosis, Alzheimer's Society Cymru are in favour of a national dementia data observatory, as we heard from Luke earlier, to collect, analyse and disseminate information on dementia to all those agencies and service providers that need accurate data to help them plan and deliver dementia services across Wales.
Many families with experience of dementia know that the burden of care often falls upon them. We know from the first coronavirus lockdown that family and friends spent an extra 92 million hours caring for loved ones with dementia. Since the pandemic began, it is estimated that unpaid carers have provided £135 billion-worth of care across the UK. Unpaid carers have been taken for granted, but at what cost to them? It cannot continue.
Existing difficulties in accessing appropriate support services, carers' assessments and respite care have been magnified by the pandemic. The chronically underfunded social care system left many with nowhere to turn. Dementia symptoms worsened for many due to the lack of expert help during the pandemic. It is vital that we learn the lessons from the pandemic. The pandemic exposed the flaws in the system, and it is incumbent on those with the responsibility and the power to rebuild the system be better equipped to deal with the kinds of extreme stresses and strains that we have seen over the last 18 months.
I will now turn to the social care system in Wales—a matter I have raised already this week with the First Minister, during First Minister's questions, due to the actions of the Labour-controlled Caerphilly County Borough Council and the devastating plans for social care for disabled adults. There is so much to improve on, and until we see some radical policies in this field, patients, their families and the staff that work in this sector will continue to suffer. That radical change should be in the form of a merger between social care and healthcare. We have been calling for this for the best part of a decade, yet we seem no closer to it. If care was free at the point of need and if there was a culture change that saw care workers respected and valued in terms of pay and conditions, then there would be a step change for workers in the sector, and also the patients that need this vital service. A merger would not just benefit those with dementia, but everybody in need of social care. I urge this Government to do what is right for the people in Wales. Diolch.