5. Member Debate under Standing Order 11.21(iv): Dementia

Part of the debate – in the Senedd at 4:20 pm on 29 September 2021.

Alert me about debates like this

Photo of Sioned Williams Sioned Williams Plaid Cymru 4:20, 29 September 2021

(Translated)

I am pleased to contribute to today's debate, and I thank my fellow Member from Plaid Cymru for South Wales West, Luke Fletcher, for raising this important issue about the need to develop and improve diagnostic approaches and to fund support in order to support the tens of thousands of people in Wales affected by all kinds of dementia. I say tens of thousands, because, as we've heard, rather than a specific figure, the truth is we don't know the exact number. According to the Alzheimer's Society Wales, more than half of the 50,000 people suffering from dementia are undiagnosed. My father died of Alzheimer's six years ago. He was one of the ones who didn't get a diagnosis or the medical or practical support for too long, and, indeed, even after he was diagnosed, my mother had to cope with what she described as a very difficult process—such a difficult process, too difficult—in terms of finding information and having access to clinical support and practical support. The expectations and the requirements of unpaid carers in this sense, people who are often vulnerable and at the end of their tether emotionally and physically, are unreasonable and create great frustration and concern. We need to create a much better system of providing dementia services and the correct support for people living with dementia and those who care for them.

Knowing what my parents went through, the difficulties that we experienced as a family in terms of having access to support services and the assessments that were needed to access that support, I can imagine entirely how terrible the COVID period is and the impact that it has already had on an unacceptable situation for too many people. Four thousand people, according to the Alzheimer's Society, are waiting for a vital memory assessment that opens the door to treatments and support. I support the call of the Royal College of Psychiatrists in Wales that specific funding is needed to increase capacity and to ensure equitable access to diagnostic infrastructure and to create a clinical pathway that's much better in terms of access to treatments.

During the pandemic as well there were great demands on unpaid carers, as Jenny Rathbone and others said, and the lockdown has exacerbated the symptoms of dementia and the terrible lack of investment in our social care system, leaving people without the support that they needed. Our care homes, where so many people who live with dementia live, they were left wide open to the pandemic. That is a scandal that the Welsh Government will need to account for. But we need action now to try and light the flame of hope in this very dark period, which has had a disproportionate impact on people with dementia.