Did you say my name then? Yes. I couldn't hear you. Your microphone was muted. Okay, thank you very much, Deputy Presiding Officer.

I welcome the debate here today, and I'd like to thank Peter Fox for bringing it forward; it is absolutely crucial that we talk about this. Although rare, there are few conditions as devastating as motor neurone disease, a rapidly progressing condition in the majority of cases, which is always fatal. Sufferers will usually experience losing the ability to speak, swallow and the use of their limbs. It is because of this that accessible housing and housing adaptations are most important to provide the best quality of life and to maintain a level of dignity and independence as the disease progresses.

Unfortunately, due to the lack of accessible housing, waiting lists for home adaptations, and the costs of those adaptations, many people with motor neurone disease are trapped in their houses, which do not meet their needs. Considering that a third of people die within one year of that diagnosis, it is an injustice to sufferers, their families and carers that some people have had to wait up to 40 weeks for adaptations to be completed. Because of these difficulties, many people with MND have had to spend prolonged periods of time in hospital, as their homes are not suitable or because they have sustained injuries such as falls or fractures. When this disease itself robs people of their quality of life, it is appalling that they have to wait such a length of time.

The Equality and Human Rights Commission found that only one out of Wales's 22 local authorities have actually set targets for accessible and adaptable housing. In the twenty-first century, when we're so acutely aware now of the need for adaptations—as Rhun said and as Peter said—a postcode lottery across Wales is just not on any more and it needs to be urgently addressed. An overly complex grants application system to install home adaptations only exacerbates these inequalities that people with disabilities face.

There is a significant way to go to support people with MND and other disabilities, and we must see reactive measures from this Welsh Government to provide the best quality of life possible for these people. We welcome the Welsh Government's announcement of the £15 million investment for NHS organisations to help undertake more clinical trials in areas such as MND, and the Conservative UK Government, who have created a £50 million research fund with the aim of curing MND. But more needs to be done, and more needs to be done now. We can't continue letting down people with MND and their families who are suffering horrendously day on day. We must do more and I urge you, everyone in this Chamber, to support this motion today, which will go some way to creating long-term help for these people.