Part of the debate – in the Senedd at 5:17 pm on 1 December 2021.
Thank you to my colleague Darren Millar for submitting this really important debate. As outlined by my colleague Peter Fox, who opened our debate today, motor neurone disease is a rapidly progressing disease that, sadly, has no cure. And I'm sure many Members across the Chamber will know of someone who has been affected by this awful disease. And, Deputy Presiding Officer, I'd like to take this opportunity to remember and briefly pay tribute to a friend of mine, the late Councillor William Knightly MBE, who sadly lost his battle to MND in 2014. Following the Member for Aberconwy's elevation to the Senedd in 2011, Councillor William became my group leader at Conwy County Borough Council, and I was his deputy. So, we worked together closely for a number of years—a poor man's Batman and Robin, you might say. He was an excellent, though, local councillor and group leader. And I still remember the times that we used to laugh together in the early months of his MND diagnosis. When he lost his ability to speak, in true Councillor William style, he decided to use a text-to-speech machine in council meetings, which at times—the machine, apparently, used to say all sorts of unintended things. [Laughter.] Now, if anyone knows Councillor William, I'm sure it wasn't the machine's fault that those comments came out in those meetings.
But, it has been pleasing to see, of course, awareness of MND raised in recent times. Indeed, in the last week or so, I noted that Kevin Sinfield, a former rugby league player for Leeds Rhinos, ran an incredible 100 miles in 24 hours—an absolutely unbelievable achievement—and all in aid of his friend and ex-team mate Rob Burrow, who was also a professional rugby player for over 16 years and who was sadly diagnosed with MND in December 2019. As of today, this challenge has raised a whopping £1.8 million, raising money directly for people living with MND. And causes like this deserve a huge amount of credit from this Chamber here today.
As I mentioned, there is no cure currently for MND, but what our motion seeks to provide is equitable and faster access to housing adaptations, which are essential to ensure that people living with MND can live safely, independently and with dignity in their own homes. And this is why we need a non-means-tested fast-track process for housing adaptations. I was really pleased to see that the Government haven't put forward an amendment to the motion today, and I'm pleased also to see Plaid Cymru call for Wales-based centres of expertise for neurological diseases to improve the scale and quality of clinical trials and increase patients' access to new treatments. Therefore, I do hope that, today, the Government will support our motion and that we can see long-lasting changes to support those who are suffering with MND and their families. Diolch yn fawr iawn.