Part of the debate – in the Senedd at 2:30 pm on 7 December 2021.
Trefnydd, I'd like a statement, please, about how decisions on NHS treatments are made in Wales. Over the weekend, a constituent of mine, Maria Wallpott, won her case in the High Court after the NHS in Wales had refused to fund a specialised treatment for her cancer that is available in Scotland and England. Now, I realise fully that the Government won't be able to comment on individual cases; it's the more general issues that have been highlighted that I'd like to see the Government reflect on, please.
Decisions like this are currently made by the Welsh Health Specialised Services Committee, and I'm concerned that the guidelines they follow may be too rigid. In Ms Wallpott's case, her oncologist at Velindre had confirmed that she had a very rare cancer; the oncologist had only seen one instance of it in five years, and the oncologist believed that Ms Wallpott's case would meet the exceptional threshold in the National Institute for Health and Care Excellence guidance, but the Wales individual patient funding requests panel, on behalf of this other committee that I've mentioned, they decided against providing the treatment. I know the family has raised concerns about whether the committee is under pressure to refuse people potentially life-saving treatments because of cost.
Again, I realise that the Government can't become involved in or comment on individual cases, but I think that having a statement setting out the processes that are followed by the specialised services committee and the principles they follow in making decisions would be useful for transparency. The long titles of the various panels and committees I've mentioned, they are confusing, but the main concern I have is that the processes mean that some treatments are being denied to patients in Wales that would be available in other parts of the UK.