Part of 1. Questions to the First Minister – in the Senedd at 2:33 pm on 14 December 2021.
Llywydd, I thank Peter Fox for that. His predecessor, as the Member of the Senedd for the Monmouthshire constituency, Nick Ramsay, was also a passionate advocate of the needs of people who suffer from motor neurone disease. On the specific issue of physical adaptations, three of the four programmes that the Welsh Government now supports are non-means-tested in nature. The large-scale adaptations for the disabled facilities grant are means-tested, but they are not always the form of adaptation that is most suited to people suffering from MND given the progressive nature of that disease and the unpredictable pattern that it follows for individuals.
But the Enable programme, where the Welsh Government recently increased the funding that we give to local authorities on the basis that it should be free for the small and medium adaptations that the Enable programme supports, should be free to the user, has been welcomed by almost all local authorities. Monmouthshire is one of those authorities that has changed its procedures to make sure that people won't be charged for those, nor are people charged for the physical adaptations grant and the rapid response adaptation programme. So, I hope that, by supporting those programmes with significant annual sums of money, it will allow local authorities to have a fast-track approach to people who are living with motor neurone disease in Wales. Our figures suggest that there are about 200 people with the condition in Wales at any one time. That means, for any local authority, you ought to be able to have a direct and personal approach to the needs of that individual. The numbers are small enough to have a personal plan for that individual and then to fast-track the adaptations that can make such a difference for them.