Part of the debate – in the Senedd at 2:35 pm on 10 May 2022.
I call for a statement on medical provision for people in Wales who suffer from ME/CFS—myalgic encephalomyelitis/chronic fatigue syndrome—which can have a devastating impact on functionability and quality of life. This is ME Awareness Week, 9 to 15 May. Now the new National Institute for Health and Care Excellence guidelines for ME have been released, it's essential to move ahead with a clear pathway for people living with ME in Wales. Campaigners in Wales tell me there might be a service for ME within some health boards, but, if there is, they don't know where these services are, who they're run by, and what treatments they're using. They now have the assistance of the medical adviser for the ME Association, who is willing both to work with them to enable people with ME across Wales to obtain the correct medical understanding and support for their condition, and to attend a meeting with the Welsh Government. They add that it's currently very unclear where or how people with ME can obtain treatment for ME in Wales. It is pot luck if one finds a GP who has a good understanding and training regarding the condition, and they have nowhere to send patients on to. I call for a statement accordingly, including, hopefully, a response to the offer of a meeting from the ME Association's medical adviser.