Part of the debate – in the Senedd at 3:00 pm on 22 June 2022.
Yesterday marked Global Motor Neurone Disease Awareness Day, and I'd like to thank the many Members of the Senedd who yesterday joined with me in meeting people living with and affected by MND on the steps of the Senedd to raise awareness of this cruel disease. And those there very much appreciated you being there.
It's pleasing that significant changes have happened in Wales over the past two years, but more needs to be done quickly. MND sufferers desperately need more investment in areas that will better their quality of life. They need to see more investment in MND research in Wales, improvements to care and services, and there's the need for an all-Wales lead consultant neurologist for MND. And it's also important that local authorities need to find ways to fast-track home adaptations to enable those with MND to live with dignity and not suffer in what is already a terrible time in their lives. MND is truly devastating for both those living with it and their families, but this is where we, the Welsh Parliament, can make a difference by ensuring that their lives are not made even more difficult. In fact, each and every one of us in this Chamber, as Welsh parliamentarians, has a moral obligation to ensure that the voices of those with MND are heard and listened to. After all, MND sufferers do not have time to waste and desperately need more support now.