Part of 1. Questions to the Minister for Finance and Local Government – in the Senedd at 2:16 pm on 29 June 2022.
Thank you so much, Minister. Last week, I met with representatives from the Motor Neurone Disease Association Cymru, together with people suffering with the condition, at an event sponsored by my very able colleague Peter Fox. One of the issues raised with me was that of MND patients being trapped in inaccessible homes because local authorities have not provided necessary adaptations. To put it simply, the cost, lack of funding and timescales involved are causing people with MND and their families really genuine hardships. A third of people with MND die within a year of diagnosis and half within two years. During that time, symptoms worsen and needs increase, so sufferers living with MND don't have the luxury of time to simply just wait. What discussions have you had, Minister, with local authorities in Wales to fast-track support for people with MND, removing the means test for low-cost and high-impact adaptations, and to maintain a register of available accessible homes for them? Thank you.