Part of the debate – in the Senedd at 2:20 pm on 8 November 2022.
I recently met with Caerphilly constituents Ellie and Owain James. At the age of 34, Owain has been diagnosed with an incurable brain tumour, and if no action is taken, the couple have been told that he will have just months to live. He's been advised on one treatment that could help him extend his life, but it's not yet been approved by NICE or the all-Wales medicines strategy group, and although very promising, it is still in the final stages of clinical trials with the medical and healthcare products regulatory agency. The only option available to them currently, therefore, is for them to pay privately—something that would cost them hundreds of thousands of pounds.
I'm also aware of the case of Caerpilly resident 15-year-old Ethan Hamer, who has been diagnosed with a very aggressive form of cancer that requires a similar form of treatment, and that form of treatment is in the early deployment stages. Both Owain and Ethan have crowdfunding sites set up in their names, which I intend to share on my social media. I've written to the Minister for Health and Social Services on the issue, but in the meantime, could the Welsh Government bring forward a statement on accessibility to new medicines that have not yet been approved for use with NHS Wales?