Part of the debate – in the Senedd at 3:33 pm on 16 May 2018.
This week is Coeliac Awareness Week. The focus is on getting early diagnosis for more people, because research shows that delayed diagnosis can lead to irreversible neurological problems affecting speech, balance and co-ordination. Coeliac disease is a serious lifelong autoimmune condition caused by a reaction to gluten—a protein found in wheat, barley, rye and some oats. People diagnosed with the condition must stay gluten free for the rest of their lives if they are to avoid very serious complications such as osteoporosis, infertility and a rare small bowel cancer.
One in every 100 people in Wales has coeliac disease, but less than a quarter of these have been diagnosed. Indeed, Wales has the lowest diagnosis rates—at 22 per cent—for the condition in the whole of the UK. On top of this, it takes an astonishing 13 years on average for a person to be diagnosed.
Coeliac UK is 50-years-old this year. It carries out sterling work on behalf of coeliac sufferers, but there is an urgent need for more money and research. In March this year, Coeliac UK launched a £5 million research fund appeal and with public support hope to deliver more research into the disease. I am proud to chair the cross-party group on coeliac disease and have seen up close the impact the condition can have.
As a GP, I know the importance of early diagnosis and the difference it makes to patients' lives. We can all do our bit by raising awareness of coeliac disease and I'd encourage you all to support the work of Coeliac UK and its local groups across Wales.