5. 90-second Statements

– in the Senedd at 3:31 pm on 16 May 2018.

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Photo of Ann Jones Ann Jones Labour 3:31, 16 May 2018

Item 5 on the agenda is the 90-second statements, and the first this afternoon is Jane Hutt. 

Photo of Jane Hutt Jane Hutt Labour

Last week, I helped launch the toward-fiftieth anniversary celebration of the Vale of Glamorgan music festival, founded and sustained by its inspiring artistic director, Welsh composer John Metcalf. I want to thank the festival for featuring the music of David Roche from Tredegar with his world premiere of Leading by Example at a concert I attended last Saturday. In his programme notes, David said:

'This is a celebration of the power of education and an expression of gratitude to the people that acted as role models and gifted the means to pursue the path I am on today.'

With composers and musicians from China, Denmark, Holland and the US featured at the festival, David’s piece was played by Cuban flautist Javier Zalba and Dutch pianist Jan Willem Nelleke, at Penarth pier pavilion. Javier Zalba also played a new piece by Cardiff composer Helen Woods. Welsh composers Huw Watkins and the late Peter Reynolds were featured in this year’s festival at Ewenny priory. 

Steph Power, a composer featured at the festival and chair of Tŷ Cerdd, backs my message about the importance of the festival, not just to the Vale of Glamorgan, but to Wales and the world. But the festival also has strong roots in our community and plays an important role in inspiring children and young people, with musicians and composers involving pupils at Ysgol Sant Curig and Gladstone and Jenner primary schools in Barry this year. Steph Power says—and I agree—that

'the festival’s engagement with the dialogue about the future of music, together with its commitment to presenting a cultural profile of our country that is international and forward looking, mark it out as one of the great success stories of the arts in Wales.' 

Photo of David Lloyd David Lloyd Plaid Cymru 3:33, 16 May 2018

This week is Coeliac Awareness Week. The focus is on getting early diagnosis for more people, because research shows that delayed diagnosis can lead to irreversible neurological problems affecting speech, balance and co-ordination. Coeliac disease is a serious lifelong autoimmune condition caused by a reaction to gluten—a protein found in wheat, barley, rye and some oats. People diagnosed with the condition must stay gluten free for the rest of their lives if they are to avoid very serious complications such as osteoporosis, infertility and a rare small bowel cancer. 

One in every 100 people in Wales has coeliac disease, but less than a quarter of these have been diagnosed. Indeed, Wales has the lowest diagnosis rates—at 22 per cent—for the condition in the whole of the UK. On top of this, it takes an astonishing 13 years on average for a person to be diagnosed. 

Coeliac UK is 50-years-old this year. It carries out sterling work on behalf of coeliac sufferers, but there is an urgent need for more money and research. In March this year, Coeliac UK launched a £5 million research fund appeal and with public support hope to deliver more research into the disease. I am proud to chair the cross-party group on coeliac disease and have seen up close the impact the condition can have.

As a GP, I know the importance of early diagnosis and the difference it makes to patients' lives. We can all do our bit by raising awareness of coeliac disease and I'd encourage you all to support the work of Coeliac UK and its local groups across Wales.