Bone Marrow Donors

2. Questions to the Cabinet Secretary for Health and Social Services – in the Senedd on 19 September 2018.

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Photo of John Griffiths John Griffiths Labour

(Translated)

9. What steps is the Welsh Government taking to encourage people to register as bone-marrow donors to support those who are in need of a bone-marrow transplant? OAQ52587

Photo of Vaughan Gething Vaughan Gething Labour 3:12, 19 September 2018

Thank you for the question. The Welsh bone marrow donor registry is operated by the Welsh Blood Service. The Welsh Blood Service actively encourages donors from all ethnic backgrounds to join the panel and asks blood donors aged 17 to 30 if they would like to register, as this age group offers transplant patients the best chance of survival.

Photo of John Griffiths John Griffiths Labour

Thanks for that, Cabinet Secretary. Marley Nicholls is a six-year-old boy in Newport East. He has a rare blood condition, aplastic anaemia, where his bone marrow and stem cells do not produce enough blood cells. He needs a bone marrow transplant, but nobody in his family is a match, and, indeed, nobody on the worldwide register is a suitable match either. So, they've launched a campaign to encourage as many people as possible to register as bone marrow donors and to have their bone marrow tested. Obviously, that hopefully will eventually benefit Marley, and, indeed, others waiting for a bone marrow transplant, but there are no guarantees at this stage. Cabinet Secretary, will you add your voice to their campaign to encourage as many people as possible to find out whether they might be a suitable match, and indeed to register as bone marrow donors? Are there any further steps Welsh Government might take in addition to what's already in place to encourage people to register?

Photo of Vaughan Gething Vaughan Gething Labour 3:14, 19 September 2018

I'm aware of that particular instance, and I know that you've played a part in supporting the family in their awareness-raising campaign, and I wish them every success in finding a donor for their child. I've visited the Welsh Blood Service and I've seen how the registry works, and it is an amazing feat, actually, to have a worldwide register to potentially find donors in different parts of the world. Now, the challenge is that because of the age range where we want donors to come forward, from 17 to 30, traditional channels aren't always successful. So, they are looking again at social media in particular, and interaction there to encourage people to come forward. The fortunate point is that many people in the younger part of their life are quite altruistic and want to do things. So, there are opportunities to look at that and take it forward. It's not just an issue for us in Wales; it's across the UK and more broadly as well, because we do operate as part of the global registry. I'm happy to look at ways in which the Government can support the Welsh Blood Service to undertake that and to make sure that more and more of us are able to help others.

Photo of Elin Jones Elin Jones Plaid Cymru 3:15, 19 September 2018

(Translated)

Thank you, Cabinet Secretary.