6. Debate on the Petitions Committee report: Petition P-04-682 Routine Screening for Type 1 Diabetes in Children and Young People

Part of the debate – in the Senedd at 3:20 pm on 3 October 2018.

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Photo of David Rowlands David Rowlands UKIP 3:20, 3 October 2018

Type 1 diabetes is an autoimmune condition under which the pancreas does not produce insulin. The body requires insulin in order to convert glucose from food into energy and, without it, that glucose remains in the bloodstream leading to high blood sugar levels. Though type 1 diabetes can occur at any age, it is most commonly diagnosed under the age of 15. There are approximately 1,400 children with diabetes in Wales, the vast majority of which—around 96 per cent—have type 1 diabetes.

Some of us in this Chamber today will know that the onset of type 1 diabetes can be extremely rapid, as well as extremely dangerous. Unfortunately, awareness of type 1 diabetes and the most common symptoms of the condition do not have a high enough public profile, and improving both the recognition and the diagnosis of type 1 is the primary thrust of this petition. As the effects of undetected type 1 diabetes can be fatal, early diagnosis of the condition is absolutely critical. However, it is also the case that the common symptoms can easily be mistaken for other less dangerous conditions. Those symptoms—known as the four Ts—are crucial to this afternoon’s debate. They are: toilet; thirsty; tired; and thinner. And, I feel that, as we may have more than those people just in this Chamber listening to this debate, I'd like to reiterate those four Ts: toilet—an increased need to urinate; thirsty; tired; and thinner. Given that we would hope that we would have a wider audience than this Chamber, I shall again reiterate those points: toilet—an increased need to urinate; thirsty; tired; and thinner.

Because of the difficulties in diagnosing type 1, and because of its relative rarity, around a quarter of the cases are not diagnosed until the patient is in diabetic ketoacidosis—I'm sorry if I haven't said that correctly—or, commonly known as DKA. Tragically, this was the situation faced by Peter and his family. Peter was given an on-the-spot diagnosis of type 1 diabetes and DKA by a rapid-response paramedic who had used a finger-prick blood test, on New Year’s Day 2015. Twenty-four hours earlier, Peter had been seen by a GP who had diagnosed a chest infection, based upon his symptoms, and prescribed antibiotics, but who had not used a finger-prick test. The paramedic immediately called an ambulance, and Peter was admitted to hospital. Despite the treatment he received, it was too late to save his life.

I want to pay a tribute to Peter’s family at this point. The petition was submitted by Peter’s grandfather, Anthony, and the compassion, drive and clear-sightedness of the whole family has been apparent to the Petitions Committee through our deliberations. In particular, Peter’s parents, Beth and Stuart, and his sister, Lia, have courageously strived to ensure that the tragedy experienced by their family should lead to improvements for others. It is also notable how they have conducted their campaign in an extremely positive way. The petition is just one aspect of their efforts to raise public awareness of type 1 diabetes, as well as significant funds for Diabetes UK Cymru. I am convinced that these efforts have already had a major impact, and the whole family should be immensely proud of everything they have achieved so far.

Turning now to the committee’s report on the petition and to our recommendations, we have considered a wide range of issues in relation to the identification and diagnosis of type 1 diabetes among children and young people. The petition was first received in March 2016. Although the petition refers to 'routine screening' for type 1 amongst children and young people, the committee established that the Baldwin family’s primary focus is on the need to improve early diagnosis of type 1 diabetes, and awareness of the condition amongst both health professionals and the public. It has been agreed by all involved in the petition that this would be best achieved through ensuring that the appropriate tests are carried out when a person presents with the four Ts symptoms of type 1.