Part of 2. Questions to the Minister for Health and Social Services – in the Senedd at 2:36 pm on 23 October 2019.
Minister, I've been an Assembly Member for 12 and a half years, and in that 12 and a half years I've had a pretty good life, actually. But one of my constituents—and you know her—Ayla Haines, in 12 and a half years has been treated more like a prisoner than a person in need of healthcare. She was a young lady when I first met her—she was 17 years old. She's now 25. She's in a secure unit in Northampton. She was sent there in 2016 to get her off her medications. Since she has been up there, her health has deteriorated. She is self-harming, she is losing weight, she has been assaulted, so she's fighting back, so now she's an assaulter as well as an assaulted. Staff know that she has OCD, for example, but tell her to hurry up and try to stop her from the middle of doing a routine, so she then gets worse. She's losing weight, she's on worse medication and tougher medication than she was on when she went there. Her physical being is being compromised.
But what really, really, really gets me, and why I've brought this to you today, is because I cannot, after 12 and a half years, get anybody to admit to saying, 'This problem, this girl, is on my desk and I'm going to sort out her issue.' I've written to you, the Welsh Health Specialised Services Committee, Hywel Dda University Health Board—all of them: 'Not my problem, not my problem, not my problem'. You, thankfully—thank you—have finally said her placement in Northampton is under the direct oversight of Hywel Dda health board. Right. Meetings are held; nobody from Wales goes, nobody from the health board goes, her advocate doesn't go, her parents aren't allowed to go—they've been marginalised. That girl's mental health, frail then, is even worse now, because she's over 200 miles away from her support network. Her family are not very wealthy, they live in Llansteffan, they cannot afford to go up there and see her. By the way, they're not allowed to, because they're told by Northampton that her telephone calls are monitored, they're cancelled at short notice, they're not allowed visits, they've got to be supervised. This girl is being driven into a small hole.
I don't know, clinically, what's wrong with her, but what I do know is that nobody here in Wales is actually taking the responsibility for monitoring that, for oversight, to make sure that she's constantly in the right place, being seen, with the right treatment, by the right people. Everyone's washed their hands of her—she's hundreds of miles away, she doesn't matter anymore. But she does matter—she matters to me, because I think of her most weeks. You said the other day, on television, that it keeps you awake at night, wondering about the waiting times for certain things. Well, Ayla Haines keeps me awake at night. She's 25; how many more years is she going to spend there? And all I want is one person in Wales who says, 'She is my job. I'm just going to check that she is having the best possible treatment'. The lack of accountability, the lack of responsibility—. And I'll tell you what it is: it's the consequence of being one. If you've got a big problem, like we have in Cwm Taf—task and finish groups, ad infinitum. But, as one poor person, there's no-one who'll actually advocate for them. Please, Minister, will you look at this? These health boards spend all their time telling us that they put people at the centre of what they do. But again, and again, and again, and again, they fail. That's three failures—everybody here will be able to tell you of more. At some point, we've got to hold these people to account. That's your job—please do so.