2. Questions to the Minister for Health and Social Services – in the Senedd on 23 October 2019.
6. Will the Minister make a statement on the Welsh Government's support for people in Wales diagnosed with Parkinson's disease? OAQ54592
Yes. I recognise the challenges that people living with Parkinson’s disease face and the impact it has on carers, friends and families. That is why we are working with our health board’s specialist Parkinson’s teams to help people living with Parkinson’s disease and their carers to get the support they need and deserve.
I was recently made aware of an organisation called the Cure Parkinson's Trust, which funds significant research in its mission to improve therapies and ultimately find a cure for Parkinson's disease. My grandfather passed away with Parkinson's disease many years ago. A constituent, David Murray, who is a former member of Newport City Council, is a trustee of the organisation. He lives himself with Parkinson's. I went to see him just the other day. He campaigns tirelessly for people with this condition. The trust is holding an important research update meeting in London next Monday, 28 October, and the life sciences sector is an increasingly important part of Wales's economy and there's a need to develop and better co-ordinate joint neurological research efforts for the benefit of the people of Wales with those that are going on across the border, and that's part of the purpose of the meeting that's taking place. I appreciate it's very short notice for the Minister, but would he be willing to either attend that meeting himself or send officials to that meeting in order to hold discussions about how approaches to research into Parkinson's can be better co-ordinated?
Yes, I can confirm that I've got a full programme of ministerial business that means that I won't be able to attend myself. I'll check with my officials about the level of our engagement with the Cure Parkinson's Trust. I don't think there has been official engagement with officials at present, but I want to say it's not just about whether they can or can't attend the short-notice event next week, but to understand the ongoing work that is already going in this field and a potential role, or otherwise, for the Cure Parkinson's Trust.
I think it is important to recognise that with the range of conditions we have today, it is possible there will be not just treatments to slow down the progression of the disease but actually the potential for curative treatments in the future. So, I will maintain an interest and I'll ask my officials to keep me up to date. And I'll happily meet the Member afterwards to get him up to date on where we are together with the Cure Parkinson's Trust.FootnoteLink