– in the Senedd at 3:13 pm on 26 February 2020.
Item 4 on the agenda this afternoon is 90-second statements. First this afternoon is Darren Millar.
Thank you, Deputy Presiding Officer. Today marks the thirtieth anniversary of the Towyn floods, and I can recall the event vividly, even though I was just 13 years old. I was sat in a classroom, waiting for the English teacher to arrive. I was amongst a small group of pupils that were fixated by the view towards Towyn through the window. We saw towering waves, 40 ft high, smashing into the sea wall, and it was an incredible spectacle. But what we didn't realise is that those waves were pounding a 400m hole in the sea defences and the tide was rushing in. Within 20 minutes, 400 homes were under water, and, an hour later, it was thousands. The water came two miles inland, and it affected communities five miles along the coast. Our home—a bungalow—was submerged. All our belongings were lost, and irreplaceable items like family photos and keepsakes from relatives were destroyed. Along with 6,000 other people, we were evacuated: the largest evacuation since the second world war. It was six months before we moved back into our home and finally got our lives together, and other families took even longer.
Today, Towyn and Kinmel Bay are still thriving seaside resorts. They always have been, and no doubt always will be, but our daily lives are regularly interrupted by flood alerts when bad weather and high tides are forecast, and, even now, 30 years on, our sea defences remain vulnerable and are in need of further investment. Storms Ciara and Dennis have reminded us all of the power of the water. Let them and the events of 30 years ago in Towyn be a wake-up call to us all to do what we can to work together to prevent the devastation that flooding can cause.
Some years ago, I met Carolyn, a truly inspirational woman who went on to tell me that she was a SWAN. Slightly taken aback, I asked her to explain that, and that was when I began to really understand the challenges faced by people who have rare diseases and undiagnosed conditions, also known as syndromes without a name, hence SWAN.
Building awareness of rare disease is important, because one in 20 people will live with a rare disease at some point in their life. Despite this, a substantial number of rare diseases are undiagnosed, and a substantial proportion are without cure or effective treatments to delay the progress of the condition.
This Saturday, 29 February, is a rare day, it is an anomaly, and Rare Disease Day has been held on the last day of February since 2007 with the specific aim of raising awareness about rare diseases and the impacts on patients' lives. We marked this day yesterday with a reception here in the Neuadd.
But I would like to take this opportunity today to pay tribute to those who work so hard in undertaking research into these diseases, and to the Welsh Government for the funding that they provide for this research: Dr Graham Shortland, who leads the rare disease implementation group, and Professor Keir Lewis, who heads Wales Orphan and Rare Lung Diseases—I've got their badge on today—are the lead physicians who are at the front line of this treatment and research into rare diseases, and are much loved and appreciated by the patients they deal with. We are very lucky to have them working for us in the Welsh NHS.
This Saturday—Rare Disease Day—please spend a moment and think about those with rare diseases and undiagnosed conditions. They need to know that they're not alone.
Last Saturday, several years of ambitious plans were realised as the Pantside woodland park and play area in Newbridge was officially opened to the public. The park boasts a playground for nought to six-year-olds, a junior play area, and a multi-use games area for such sports as football and basketball. It is a true testament to the proud community of Pantside, which has, through the Pantside Association of Residents and Tenants, worked for seven years to secure this valued asset for its community. With a lack of facilities for youngsters on the estate, the residents and tenants worked together to secure £0.25 million from the National Lottery fund to establish this park. At Saturday's opening, it was really delightful to see just so many children—and there were so many children—from my community enjoying these facilities. And as a Newbridge girl, born in Pantside, the opening had an added resonance for me.
So, I would like to place on the record my sincere thanks to all of those involved over these years to help bring this fantastic facility to Pantside: local Councillor Gary Johnston and Councillors Leeroy Jeremiah and Adrian Hussey, and the residents association of Gwyneth, Julie, Jean, Amy, Sue, and many others, who have driven this forward.
Playgrounds are truly vital assets for our communities that can help to give children from all backgrounds the chance to play, to learn and to make friends. I know that this scheme will be a huge boost to the community, but it's only just the beginning. The residents are now hoping to add a skateboard park, an outdoor auditorium, and outdoor classrooms to this former disused site, and I wish to congratulate wholly their collective efforts.
Thank you.